• The Christie – Blogged for them numerous times and also attend in their Secondary Breast Cancer conference my CNS organizes.  Also have been involved in Patient Representative Groups in various areas of the hospital aswell as the School of Oncology.
  • MacMillan – In 2016 I joined the Breast Pathway Board for Greater Manchester as a Patient Representative for secondary breast cancer.  I was also asked to take part in ‘Changing Prospects 2016’ where I was on the patient panel to talk about a ‘good survival’ living with and beyond cancer
  • Salford UniversityWoMMeN (Word of Mouth Mammography e Network) I contibuted as a patients advocate to this new initiative for women who are having a mammogram for the first time or subsequent times.  This project completed in 2017.
  • Prevent Breast Cancer (formerly The Genesis) – I have presented at their CCC (Cross Cultural Conference) and have attended their Asian Breast Cancer conferences and have been a peer support at the Patient and Patient Support Initiative – PaPSI
  • 100k Genomes Cancer PPI group – Genomics England has an initiative to gather 100,000 patients DNA across the UK.  I am patient representative for the Manchester group.
  • ECMC – Experimental Cancer Medicine Centre in Manchester – I am the patient representative on the steering committee.
  • FACT – Fit After Cancer Treatment – I have been involved in their branding and presented at their launch of this great initiative which is in conjunction with Greater Sport (Greater Manchester)
  • Cancer Warriors – I have set up a local Saddleworth face to face cancer group with this charity due to the close of the cancer support network (cancer CAFE back in 2016). It is held every 3rd Tuesday of the Month at Scona Cafe in Uppermill
  • Users & Carers at Salford University – this involved student learning where I have spoken to groups about my own story so that nurses can learn from my experience.
  • #Oldhamhour – this is a twitter chat (every Monday 9-10pm) for local businesses which was created by three of us – two local business people – Lee Hollingsworth and Jude Gidney aswell as myself.
  • METUP UK METUP in USA created by Beth Caldwell and Jenny Grimes I saw the need for a group for advocacy in the UK mission statement – an advocacy group aiming to turn metastatic breast cancer (MBC) into a chronic illness and support MBC patients – see our Twitter and Facbook pages for further information.
  • I regularly present my story at conferences and how social media has shaped After Breast Cancer Diagnosis and the abcd retreat.