• The Christie – Blogged for them and also attend in their Secondary Breast Cancer day event that my CNS created to support patients.  Also have been involved in Patient Representative Groups in the hospital aswell as the School of Oncology.
  • MacMillan – In 2016 I joined the Breast Pathway Board for Greater Manchester as a Patient Representative for secondary breast cancer.  I was also asked to take part in ‘Changing Prospects 2016’ where I was on the patient panel to talk about a ‘good survival’ living with and beyond cancer
  • Salford UniversityWoMMeN (Word of Mouth Mammography e Network) I contibuted as a patients advocate to this initiative for women who are going  to have a mammogram for the first time or subsequent times.  Their web site gives answers and support to ladies.  This project completed in 2017.
  • Prevent Breast Cancer (formerly The Genesis) – I have presented at their CCC (Cross Cultural Conference) and have attended their Asian Breast Cancer conferences and have been a peer support at the Patient and Patient Support Initiative – PaPSI
  • 100k Genomes Cancer PPI group – Genomics England has an initiative to gather 100,000 patients DNA across the UK.  I am the patient representative for the Manchester group.
  • ECMC – Experimental Cancer Medicine Centre in Manchester – I am the patient representative on the steering committee for this research committee of early stage trials.
  • FACT – Fit After Cancer Treatment – Was involved in their branding and presented at their launch of this great initiative which is in conjunction with Greater Sport (Greater Manchester)
  • Cancer Warriors – I set up a local Saddleworth face to face cancer group with this charity due to the closure of the cancer support network (cancer CAFE back in 2016). It is held every 3rd Tuesday of the Month at Scona Cafe in Uppermill.
  • Users & Carers at Salford University –  was involved in student learning where I have spoken to groups about my own story so that nurses can learn from my experience of breast cancer.
  • #Oldhamhour – this is a twitter chat (every Monday 9-10pm) for local businesses which was created by three of us – two local business people – Lee Hollingsworth, Jude Gidney and myself.
  • METUP UK – METUP in USA was created by Beth Caldwell and Jenny Grimes. I saw the need for a group for advocacy in the UK – it’s an advocacy group aiming to turn metastatic (secondary) breast cancer (MBC) into a chronic illness and support MBC patients – see our Twitter and Facebook pages for further information.
  • I regularly present my story at conferences and how social media has shaped After Breast Cancer Diagnosis and the abcd exercise retreats I have created for patients.
  • Attending European conferences like ESMO – European Society of Medical Oncology and ABC (Advanced Breast Cancer) Lisbon.