Supporting primary and secondary breast cancer patients to make informed choices. Sharing information and up to date news on treatments, breast surgeries, consultants, hospitals and providing useful links
I set up ABC Diagnosis to give breast cancer patients easy access to crucial information to help them make informed treatment decisions.
Following my own breast cancer diagnosis, my experience taught me many patients are not being offered all available options when it comes to reconstructive surgery.
Patients should be equipped with all of the information they need to make fully informed decisions and know the right questions to ask.
Whether they opt to have a single mastectomy, double mastectomy or reconstruction, it’s important they’re aware of their options.
If their chosen surgery is not available at their local hospital they should be able to have the treatment they want elsewhere, and feel confident in being able to do this.
I want to help people find information on reconstruction surgeons and specialists, empower them to request to see a different doctor if they choose and encourage them to ask for a second opinion if they feel it’s appropriate.
I think it is important that when time is of the essence, patients can access links to hospitals and cancer networks and be able to do this quickly.
I share current breast cancer news and information from the UK and around the world, providing patients with up to date knowledge regarding their disease.
This is all about making the right CHOICES for you following a breast cancer diagnosis.
I am developing a web based app which will provide ‘true’ photos of reconstructions performed in UK hospitals. Provided by patients, the images will be available at patients fingertips helping them to make the right decisions quickly.
Exercise and its benefits is another area where information is lacking. For patients going through chemotherapy or recovery, exercise can help enormously, physically and mentally.
You will hear me talk a lot about cycling, jogging, walking and yoga as these things have personally helped me greatly.
I provide patients with peer to peer support on social media and occasionally there’s an opportunity to meet up with other breast cancer patients around the country.
We have regular small meetings with a group called Breast Cancer Chat World Wide and you will find their details in the links section.
Only one year after launching this website, I was diagnosed with secondary (metastatic) breast cancer. This is also known as stage IV breast cancer and is incurable.
I am continuing to develop the site with the addition of secondary breast cancer information, even though I have treatment every 3 weeks and will continue this for the rest of my life.
There is currently no cure for secondary breast cancer and there are many issues that need highlighting and addressing.
This is why I have also been lobbying the government and even met with a previous Shadow Health Secretary and my own MP; Debbie Abrahams in January 2016 to push issues in conjunction with Breast Cancer Care.
I hope you find this information useful and informative enough to want to share it with others.
Thank you – Jo