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abcd - After Breast Cancer Diagnosis

7 hours ago

abcd - After Breast Cancer Diagnosis
I’d love to see what #breastcancer type Terlisa had & treatments she has been on & how a patient gets to 20 years living with metastatic breast cancerAND how the UK can increase our survival outcomes... "It’s my 23rd cancerversary today! (Stage III - 3 years, Stage IV - 20 years). Continue to watch my journey unfold! #TerlisaFights #BreastCancer #MetastaticBreastCancer #23YearThriver #ThisIsMBC "buff.ly/3DkpgI3#DarkerPink #secondarybreastcancer ... See MoreSee Less

Terlisa Sheppard on Twitter

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“It’s my 23rd cancerversary today! (Stage III - 3 years, Stage IV - 20 years). Continue to watch my journey unfold! #TerlisaFights #BreastCancer #MetastaticBreastCancer #23YearThriver #ThisIsMBC #...
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abcd - After Breast Cancer Diagnosis

1 day ago

abcd - After Breast Cancer Diagnosis
Very similar what happened to me with neck node involvement and this is why I created an infographic & have pushed for awareness of the RED FLAG signs & symptoms which are now signposted by NHS England #DarkerPink #secondarybreastcancer #metastaticbreastcancer #IAmThe31 ... See MoreSee Less

I was told I had secondary breast cancer, but nobody explained what that meant

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When Anne found a lump in her neck, she had no idea it could be linked to the breast cancer she had years earlier. She tells us how she got the news, and how secondary breast cancer affects her today.
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abcd - After Breast Cancer Diagnosis

1 day ago

abcd - After Breast Cancer Diagnosis
Liquid biopsies one step closer to entering the clinic to help guide #BreastCancer treatment: buff.ly/3ohsIPi via ICR London ... See MoreSee Less

Liquid biopsies one step closer to entering the clinic to help guide breast cancer treatment - The Institute of Cancer Research, London

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A simple blood test can identify specific genetic mutations in patients’ breast tumours to help guide their treatment and assess how likely patients are to relapse, a study shows.
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abcd - After Breast Cancer Diagnosis

2 days ago

abcd - After Breast Cancer Diagnosis
I wish we had a system that supports cancer patients as well as COVID patientsIt’s seems there’s a competitiveness for COVID All drugs are pushed through urgently & #secondarycancer patients are left to die ... See MoreSee Less

Sajid Javid on Twitter

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“BREAKING NEWS: The UK has become the first country in the world to approve a COVID-19 antiviral - @MSDintheUK's #molnupiravir. Great news from the @MHRAgovuk which will benefit the country's most v...
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abcd - After Breast Cancer Diagnosis

2 days ago

abcd - After Breast Cancer Diagnosis
Drug trial offers new hope for those with #metastaticbreastcancerScientists are studying whether #talazoparib could help treat those with incurable #secondarybreastcancer #darkerpink #busylivingwithmets ... See MoreSee Less

The Guardian on Twitter

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“Drug trial offers new hope for those with metastatic breast cancer t.co/80LGZtKcrd”
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abcd - After Breast Cancer Diagnosis

3 days ago

abcd - After Breast Cancer Diagnosis
Philippa comments on the piece in The Times and this is just a taste of what happens when you have metastatic disease and the inequalities around that one hospital does one thing and another does something else. You have to be very knowledgeable to search out the best options OR to be able to pay for private treatment which costs £0000's"I'm quoted in a The Times article about access to radiation for cancer patients (complete with super unflattering red-faced screenshot from last week's parliamentary select committee). I feel my comments are decontextualized a bit so a lil thread to fix that...The Times has me saying I was forced to pay privately for radiation & links this to Covid backlogs - that's not quite right. @ the select committee I referred to the targeted brain radiation (gamma knife) I paid for a few weeks ago after we discovered my brain mets were growing.There's two main types of radiation for tumours in the brain - whole brain radio (a smaller dose but over the whole brain) or targeted radio (a higher dose only on the tumours). I've already had whole brain & you can't have it twice.When I had progression in September I knew it was targeted or nothing. I also knew that, as with my first brush with brain mets, I likely had too many tumours to have targeted radiation on the NHS except for at two specialist centres - one in London and on in Sheffield.How did I know this? I had done lots of research including in online MBC groups in May when first diagnosed and info from other patients was invaluable in working out the lay of the land for brain radiation in the UK. It is very opaque and unclear what is available where.As expected, my own hospital (a top cancer hospital, no slouch) turned me down for targeted radiotherapy. They said I had too many tumours. How many is too many? I've heard of people getting turned down with 8; I've heard of others having 40 treated on the NHS. Again, very opaque.My NHS radiation oncologist also practices at a high tech private gamma knife centre in London. He knew I had raised significant ££ on Gofundme through the enormous generosity of friends and family (bc I told him). He called me that night & said they could do the radiation for me.Not only that but they could get me in in two days. When you have cancer growing in your brain every hour feels like too long to wait for treatment. Of course I jumped at the chance and am now continuing under their care for ongoing local treatment in my brain.Had I not had the funds (& again, it's only due to the huge kindness of friends & family that I did) my only other option would have been contacting the London & Sheffield NHS centres of excellence for gamma knife and hoping they could do it. But the process would have been weeks.So saying I was 'forced' to go private depends on interpretation; I faced roadblocks in getting radiation on the NHS & being able to pay removed them immediately which was a huge relief to me & my loved ones. But this was not a Covid story - it's a broader one about NHS capacity.I still have no idea why some NHS hospitals can radiate 25 brain metastases & others say the cutoff is 8. That's a huge difference & a life saving one surely? Again- targeted radio was my only option. Patients need more and better info/options. But it's broader than a Covid story.I partly wrote this in case my rad onc sees the Times article and thinks I'm criticising his offer to treat me privately when in fact it saved my life & I'm endlessly grateful it was an option. I just think it should be an option for everyone so the NHS needs to get on it!"#BusyLivingWithMets #DarkerPink #metastaticbreastcancer #secondarybreastcancer #IAmThe31 #stage4needsmore ... See MoreSee Less

NHS backlogs: Red tape ‘pushes patients into dated cancer therapy’

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Cancer patients are being denied advanced radiotherapy because of “perverse” NHS tariffs that incentivise more time-consuming treatments, ministers have been told. Sajid Javid, the health secretar...
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